Tag: advocacy

Raising Awareness.. Are You Listening, Learning, or Going Posting To Post?

My Current Battle With Gastroparesis

Infusion Preparation & My RA Story Re-Post (With Updates)

Blog Polycythemia Vera

She Is Not Just Surviving, She Is Thriving Deb’s Journey With PV & Breast Cancer

Patiently Waiting for Ed’s Follow Up Appointment

ABOUT US

Thank you for visiting our page! We hope you will find our story and blog interesting enough to follow. Prior to publishing any stories or blogs, WE (Ed and I), have discussed the topics and content, we have both given permissible use and are in full agreement and in control of what is being shared. We respect each other enough to know what boundaries not to cross. In the past, we both led very private lives. While discussing the idea of a blog, we knew there were topics that would require exposure to our personal world. As a couple, the decision was made to proceed with the blog. Ed and I have incurable major illnesses. Specifically, Polycythemia Vera and autoimmune illnesses. We decided early on our lives would not be defined by these diagnoses. This is our journey and we are sharing it with you!