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September Awareness – Topic #1 – Endometriosis

What is endometriosis? Endometriosis is a chronic condition, and as such, there is no cure. However, it can be treated to control the pain and prevent the symptoms from worsening. … Read More

Patiently Waiting for Ed’s Follow Up Appointment

I sit in the parking deck once again. Patiently waiting, feeling helpless as Ed goes into UVA Emily Couric Cancer Clinic to have labs drawn and to see the MPN. … Read More

Actemra – Infusion #1 – The Latest Journey

As I begin Actemra with Infusion # 1  I learn New Things About My Body Too July 16, 2020, began my very first Actemra infusion for rheumatoid arthritis and my … Read More

I’m Fine, Right?

As much as I would love to begin this post with a wide variety of positive memes and quotes, it is just not in me today. The struggle is real … Read More

A Year Later … He Has PV But PV Does Not Have Him

(Audio – DropKick Murphys – You’ll Never Walk Alone) Press Play   Here we go again, a year after Ed’s last phlebotomy for Polycythemia Vera, he will receive another phlebotomy … Read More